Caregiving Your spouse Following A Brain Injury

With a brain injury, and possibly physical injuries, theonce knew may no longer exist, he/she is still alive. 
injured person may be a shell of who he/she onceHow do they mourn the loss of what is gone but is
was.  Because of this, caregivers often becomeactually there?  For many there will be a process of
'married widows' because of the loss of themourning for the relationship that once existed but few
relationship they had prior to the injury.  They may nofriends and family members will understand or have
longer have an equal partner.  With the manysympathy for those feelings of grief that will likely be
changes in their spouse, social occasions with friendsexperienced by the non-injured spouse.
and family may also gradually become fewer andIt is important for caregivers to look after themselves
fewer.  This places the 'healthy' partner in a 'socialso that they remain healthy and are able to make
limbo' situation.better decisions.  It is important that they stay
Caregivers very often receive little sympathy orconnected with others - their friends and family, as well
support from family and friends because the injuredas possibly joining a support group.  It will be equally
person will often be on their best behaviour when theyimportant for them to occasionally get respite and take
occasionally do see those outside of immediate familytime for themselves, and if necessary, they must ask
members.  Survivors usually save their worstfor help.  No one knows if help is needed unless it is
behaviour for their spouses.asked for.
And for this reason, occasionally parents or grownBecause of the difficulties of being a caregiver, many
children, (particularly if they are not the caregiver'srelationships dissolve following the injury.  Those who
children), of an adult survivor may attempt to intervenemake the decision to leave the relationship usually do
to the detriment of the attempts of the spousalso with feelings of guilt and certainly with feelings of
caregiver to give support and stability.  Thefailure.  Friends and family will sometimes not
intervention sometimes may not be in the form of helpunderstand this choice and may fault the  caregiver
but rather of criticism or attempts to dissuade thefor 'giving up' especially if it appears to others that
brain-injured survivor to cooperate. ie.: not attendingthings are going well.
support groups or therapy sessions, etc. if he/sheFor those who would criticize, it is best to remember
doesn't want to or the parents or children don't thinkthat none of us know what goes on behind closed
there is a need for them to go.  This makes the roledoors.  For each of us, a decision such as this can
of a spousal caregiver even more difficult.only be made by those individuals involved.
For the non-injured person, although the spouse they