Cerebral Palsy and the Small Victories

Celebrate cerebral palsy and the small victories. No, iteventually have a home and normal daily
does not mean anyone is ever happy that he/she, or aindependence.
loved one, has permanent brain damage. It simply- Bathroom handrails
means to be glad for every accomplishment toward- Shower chair
independence, no matter how small.- Bed rails
For example, if you have a child with CP, he/she may- Lifting chair
never walk. However, learning to use the control on an- Kitchen gadgets
electric wheelchair can provide some autonomy. It- Wheelchair
might be the not-so-simple act of buttoning a shirt.- Crutches
People without brain injury take so many things for- And the list goes on, and on, and on. . .
granted. Yet, this seemingly small act should beHave you ever heard the expression: "Necessity is the
considered a large victory.mother of invention?" In other words, if you cannot do
No, it is not fair that you or someone you love hasa necessary activity to be more independent one way,
cerebral palsy. But, no one ever said life was fair. Itfigure out another, and use those aids.
does no good to grouse about all the things thatFor example, if you cannot reach the upper kitchen
cannot be done. However, it is quite a different mattercupboards, you can find pieces of furniture that will
to celebrate new accomplishments, regardless of howstore your dishes and food. A pie safe is great for
small.food supplies. A movable island can hold dishes and
Living Aidsprovide a place to prepare meals for those who may
As with any other child, a parent should have the goalbe confined to a wheelchair. Likewise, dressing aids
to help a child reach his/her full potential in self-care,are available to help someone with cerebral palsy be
independence, and adaptive skills. Kids without specialable to get dressed independently.
needs generally reach standardized benchmarks ofSo many aids are now available to help the disabled
growth and development in an expected period oflive independently, if at all possible. However, it is a lot
time. The big difference between a child with cerebraleasier to begin raising a child with special needs with
palsy and a "normal kid" is the inability to achievethe end goal of possible independent living. If you are
expected abilities at the appropriate time-if ever.always doing things for a child with special needs, or if
Thankfully, a plethora of living aids have beenyou allow others to do things you can learn to do for
developed to help children and adults with cerebralyourself, neither is a favor. Even if it takes 10 times
palsy live as independently as possible, under thelonger, at first, and is frustratingly difficult, the goal of
circumstances. If you or your child is mildly orachieving any independence is worth the effort. Then,
moderately affected by CP, independence may not beyou can celebrate cerebral palsy and the small
an unreasonable expectation. For example, this shortvictories.
list of living aids may enable you or your loved one to