"Your Child Has Autism, a Developmental Disability," What to Do When You Receive a Diagnosis

It is important to be aware that negative feelings willbetter chance of changing negative behaviors,
arise. Try not to get attached to those feelings, don'timproving performance, increasing self-acceptance,
numb them out, and don't bury them. They will shiftand self-esteem. However, if you missed that
over time. Remember, it is a process. We are allopportunity as I did with Brandon, do not give up. We
different, but I have found that surrendering to "what is"did not find out Brandon had Asperger's until he was
helps one to move through the acceptance stagethirty-two years old. Early intervention is key, but I
more quickly, as resistance to "what is" will only prolongknow firsthand it's never too late to get help.
it. When you are able to face the diagnosis head-onA) What I wish I knew early on about having a child
the negative feelings will begin to fade away, andwith special needs:
acceptance is right around the corner.1. Do not take it personally.
1. Gather as much information as possible.2. It is not your fault.
2. Join support groups.3. The sooner you give up resistance, the sooner you
3. Talk about your child's disability.can help your child.
4. Keep a journal, and write down anything and4. Trust yourself.
everything.5. When traditional treatments are not working, look
5. Find one person you can share your innermostinto alternatives.
feelings with.6. Doctors are not always right.
6. When you are ready talk to other parents. They7. Find a physician you and your child like, and who
can be a great source of information and support.understands your situation.
7. Try to live in the present moment whenever you8. Acceptance comes only when you are ready.
can.9. Take care of yourself first, and you will have more
8. Be courageous, and believe in yourself.to give.
9. Trust your feelings.10. Get as much help, assistance and support from
10. Be kind to yourself.people who care, as often as possible.
Do not keep secrets, especially about a health11. Hold onto HOPE, and never let it go.
condition. It causes more harm than good.As parents, we must remember raising a child with
My son, Brandon was diagnosed with epilepsy andspecial needs is a process. There may be days when
learning disorders at age nine. The pediatric neurologistwe do not know how we can hang on, but somehow
told us to tell no one, including Brandon that he hadwe make it through. The tools I found to be the most
epilepsy, due to the stigma attached. For severalhelpful were living in the moment, and having hope.
years, I did what she said. That was one of the worstWhen we live in the moment, not out into the future, it
things I could have done.helps to eliminate fear and anxiety. I also found that
I know from personal experience, that when ourholding onto hope was not a luxury, it was a necessity.
children are helped at an early age, they have a much